Welcome!

Welcome to my Polish blog! My Polish great grandpa was orphaned during the Chicago flu epidemic of 1918 & spent his life looking for all of his siblings. Some family stayed in Chicago & some returned to Poland. Some family was Catholic, & some are believed to be Jewish. I post the things I learn in efforts it may help someone else in their research. I also hope this blog helps me connect with others that know about the people I'm learning about. Digital images of records or links are put inside most postings so you can view records full screen. I encourage comments. Feel free to sign the guestbook, stating who you're looking for. Maybe we can all help each other out this way, because there are many challenges with Polish research. I hope you enjoy learning with me. And I hope to be taught more about my Polish heritage.
I have added a few languages to this blog through Google translate. I hope that it may be accurate enough with the communication of ideas.
Thanks! -Julie

Witam! (Polish translation of Welcome)

Witam w moim polskim blogu! Mój pradziadek został osierocony w czasie epidemii grypy w 1918 roku i spędził wiele lat poszukując swojego rodzeństwa. Część rodziny pozostała w Chicago a część wróciła do Polski. Część rodziny była katolikami a część, jak przypuszczam, wyznania mojżeszowego. Piszę w moim blogu o rzeczach które odkrywam i o których dowiaduję się mając nadzieję, że pomogą one wszystkim zainteresowanym w ich własnych poszukiwaniach. Wierzę, że ten blog pomoże mi w skontaktowaniu się z ludźmi którzy wiedzą coś na temat osób ktorych poszukuję. Zdjęcia cyfrowe lub linki umieszczone są w większości moich komentarzy i artykułów, można więc otworzyć je na cały ekran. Gorąco zachęcam do komentarzy. Proszę wpisać się do księgi gości i podać kogo Państwo szukacie. Może będziemy mogli pomóc sobie nawzajem, ponieważ nie jest łatwo znaleźć dane których szukamy. Mam nadzieję, że zainteresuje Państwa odkrywanie ze mną tajemnic przeszłości. Mam rówież nadzieję poznać lepiej moje polskie dziedzictwo.

Dodałam do mojego blogu automatyczne tłumaczenia poprzez Google. Ufam, że będą wystarczające w zrozumieniu o czym jest mowa w artykułach i komentarzach.

Dziękuję! - Julie

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23 July 2015

DNA testing, my experience

It has been a crazy time for me lately. Thankfully I have found some really big helpful things in my personal life. I have a rare genetic disease that has baffled medical specialists for decades. Dr. Lehman-Horne is my new hero! He has worked really hard for years with people around the world to identify genetic mutations for the problems I have, and to make information accessible to patients and doctors. Most people funding research aren't interested in rare diseases like mine, especially because no medications work for me (or most people like me). I often have violent reactions to medications.

There are lots of good choices for DNA testing. There's one DNA test that only profiles periodic paralysis, but it's 500$ which I couldn't stomach right now. Especially after many years of enormous medical expenses trying to keep safe and for life threatening issues, (like seeing if my episodes were TIA's) which the hospitals didn't even address correctly anyway. (So frustrating!) Also, I knew that if I did DNA testing that I wanted the family history part too! So I chose 23andme because I was told it showed several genetic markers for my problem. I posted a tree on My Heritage to connect with my 23andme DNA profile. My grandfather previously did an Ancestry.com test. Two of my children are also now showing symptoms, so I just had one child complete the Ancestry.com DNA test and mailed it in yesterday.

The last few years it has been extremely difficult to regularly see, type, walk and speak. I was also plagued with very frequent complicated migraines that completely incapacitated me, which would then be followed with no ability to walk. Periodic Paralysis is an ion channelopothy, so basically every cell in my body is affected. I've always fought really hard to keep walking, and to keep trying to live a somewhat normal life. Now I know what to fight back with! (potassium, 70% alkaline diet, avoiding sugar and lots of carbohydrates, balancing electrolytes. Then of course avoiding my food allergy issues like gluten, dairy, soy and nightshades. I still have to take it easy, which does try my patience, and I have to really think things through to prevent daily episodes. (Example: Now I know that popcorn and soda will guarantee no walking for me for 24 hours!) Now I am better able to reply back to people, and do what I love, family history: learning family stories, get back to researching, and finding new records. If you have messaged/emailed me and not heard back from me, then I have not seen your message. Please re-send it.

I've digitized all my records now. I have a small bookshelf that's my archives which contains original records and letters in archival safe boxes. Otherwise I am paper free. Hooray! I've been re-reading stories passed on to me, to prepare for some upcoming interesting posts. Right now I plan to post every 2 weeks, and I have reminder alerts set up. If I can get things even calmer in my life, I'll post once a week.

I've already heard from several people with DNA matches. There are a few I'm still not seeing where the connections are. Some people have found matches to me 200 years back. If you think you might be a match to me, send me a message and I can direct you to various places I have posted trees. I do hope this will help us piece together Polish families and other connections we've had "brick walls" with. I'm looking forward to the future of how DNA can help with research and health!

Another post I did about me and Periodic Paralysis:
http://juliesimplifieslife.blogspot.com/2015/06/trying-to-balance-my-life-periodic.html

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